World Thalassaemia Day 2023
May 8 marks World Thalassaemia Day, which is a special day dedicated to raising awareness about a genetic disorder called Thalassaemia. Due to this condition, the body produces insufficient amounts of haemoglobin, which is necessary for the blood’s ability to carry oxygen. Reduced quantities of oxygen-carrying proteins are found in the blood of those who have thalassemia, a disorder that is inherited. The purpose of World Thalassaemia Day is to raise awareness of this blood condition, promote knowledge about it, and show support for those who have it.
What is Thalassaemia?
Thalassemia (thal-uh-SEE-me-uh) is an inherited blood disorder that causes your body to have less hemoglobin than normal. Red blood cells may carry oxygen because haemoglobin is present. Anaemia brought on by thalassemia can make you feel exhausted.
You might not need therapy if you have mild thalassemia. However, more serious conditions could need frequent blood transfusions. You can take action to deal with exhaustion by following a nutritious diet and doing frequent exercise.
World Thalassaemia Day-History
The first World Thalassaemia Day was founded and sponsored by the Thalassaemia International Federation (TIF), a non-profit organisation that advocates for thalassaemic individuals and families around the world. Mr. Panos Englezos, thalassaemia patients, and their parents from the UK, USA, Greece, Italy, and Cyprus created the TIF in 1986. George Panos, the son of Mr. Panos who had died from thalassemia, is remembered on this day. Since then, May 8 has been designated as World Thalassaemia Day to increase awareness of the disease and its effects on people and families around the world.
About the Thalassaemia:
The production of haemoglobin, the protein that transports oxygen in the blood, is impacted by thalassaemia, a genetic blood illness. Alpha and beta globin are the two types of proteins that make up haemoglobin. A mutation in one or both of the genes in charge of creating alpha or beta globin causes thalassemia, which results in the absence or diminished production of one or both forms of globin. As a result, there is a shortage of haemoglobin, which can result in anaemia and other issues.
Alpha Thalassaemia occurs when there is a problem with the alpha globin gene, resulting in a reduced production of alpha globin.
Beta Thalassaemia, on the other hand, occurs when there is a problem with the beta globin gene, leading to reduced or absent production of beta globin
Dr. Thomas Benton Cooley
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